Friday, June 20, 2014

Through the Looking Glass


Hello….Are you there Burberry?  It’s me Twisty.  I know we don’t talk much, but lately I’ve needed you and you haven’t been there.  I’ve been searching, and praying, and asking others for advice.  But it seems nobody makes designer baby glasses.  Don’t you care?  Has what we shared meant nothing to you?  Why would you leave me at a time when I need you the most?  Will my son be subjected to wearing generic looking frames until he can grow into your children’s line?  DO YOU EVEN HAVE A CHILDREN’S LINE?!?

A year ago we had just barely received Gominic’s diagnosis, and we were pretty down.  We were searching for answers that no one could give us.  Will my son walk?  Will my son talk?  I did countless internet searches and sought the advice of strangers who had walked this path before.  We flew him across the country to the best specialist in the world, all in search of answers.  We soon realized that only God had the answers, well, God and Gommy, but neither was willing to talk.  At that point we made a decision, a decision to be happy.  At that point we quit mourning Gommy’s condition.  I blogged about changing our attitude and perspective, how I would use Google for more valuable information such as finding the perfect designer baby glasses.  We changed our perspective and never looked back. 

After a year of being a special needs mom, I realize now I was naïve.  This past year brought more than I could have imagined.  And the thought of baby designer glasses seems a little silly now.  Not from the perspective of not being necessary, because this year has taught me more than ever that cuteness is next to godliness as the saying goes.  No, it seems silly from the perspective that Burberry doesn’t understand what raising a special needs child is like any more than Jon Gosselin does.   They don’t realize that some special needs moms are just as shallow as ever and have learned nothing of value from our "higher calling".  And quite frankly choosing from two different shapes (and admittedly 20 different shades of blue) to pick out my son’s glasses is unacceptable.  You would have thought we could have at least gotten the rectangle ones, but apparently those are only deemed acceptable for 3 year olds.  Seriously, who is in charge of these things?  Admittedly, he does chew on his glasses more than he wears them, but does that mean he shouldn’t look good while chewing on them?!  Where is the ADA board when you need them?  This feels a little discriminatory.  

This year has taught us that the world doesn’t know what we are going through, but they are trying to understand.  Our city recently started planning an all inclusive playground  designed for special needs kids.  My son will not remember living in a world where playgrounds were not designed with him in mind.  The world wants to understand, and it gives me hope for my Gominic’s future. 

So, Burberry, if you are out there…it’s me Twisty.  I would like one pair of ombre’d baby designer glasses in small.  And if it’s not too much to ask, I’d like them to look a little ironic.  My Gominic is nothing if not ironic.