the myth of the "worst case scenario"

i am convinced that the concept of a "worst case scenario" is a artificial construct designed to give us a weird measuring stick to figure out how emotional we should be about situations. nothing is ever the worst case scenario, and when you actually get faced with the supposed "worst case scenario" you've been dreading you kind of realize that it's not all that bad and everything is and will continue to be fine. might  not be true for everyone, but it's true for us at least.

"worst case scenarios" we've faced so far:

1) dom having CP when we thought it was just some tightness
2) dom having bilateral diffused PMG instead of the manageable unilateral
3) and then yesterday finding out that dystonia is more of an issue for him than spasticity...when spasticity could be solved by the SDR surgery...where as dystonia is kind of a new ball of wax. 

but in all of this process of figuring stuff out, dominic has been the same. it's all just been a matter of getting to know him and what makes him...well him. he's been the same happy kid. the construct of a "worst case scenario" has been all us. he's been the same happy kid doing big things and learning how to do even bigger things. 

so when we're navigating this sea of uncertainty...really dominic is our compass. and that's pretty neat. 

so SDR is officially off the table for us for now...and maybe permanently. but that's ok. our job has always been to make dominic the best damn dominic he possibly can be...as we do with vincent and as anyone would do for any of their kids. and really now that we know it's dystonia and not really spasticity...we can develop a plan. we can figure things out. we can start teaching him how to manage that. 

so maybe the "worst case scenario" is actually kind of a good thing. i strongly believe that nothing happens by accident...that everything is divinely ordained. and for as sad as we were when we got turned down for SDR...we are just that amount of relieved that the law of unintended consequences didnt come back and bite us. 

so much of this experience/journey has been a matter of figuring things out and exploration. wondering whether we are doing everything...and i mean EVERYTHING that we can to help gommy excel at whatever he wants to excel at. and so much of it too has been about checking our own egos at the door and making sure to keep his needs, and his goals, and his dreams out front. 

besides. does anything else really matter in the grand scheme of things we're you're talking about this level of cuteness?